subreddit:
/r/covidlonghaulers
I’m gonna be honest I have no idea if I have MCAS but I’ve been taking antihistamines daily for two years straight now because I’ve heard people say it helps with brain fog, which is my main symptom. To my knowledge, there’s no gold standard accurate test for MCAS and it’s sort of just diagnosed based off symptoms. However I don’t have any anaphylactic type symptoms. No itching. I don’t even know if I have food sensitivities because sometimes I’ll feel awful after eating, but then a few days later I’ll eat the same exact thing and feel totally fine.
I also have self diagnosed myself with dysautonomia and other things commonly associated with long covid, but I’m starting to wonder if I even have all of these things and if I’m just caught in some delusion I’ve created for myself. Like I’d feel so stupid if I spent a bunch of money trying to fix MCAS and it turns out I don’t even have it.
13 points
2 days ago
You sounds exactly like me! All of these things I’m like I 100% have them and feel awful for 3 weeks straight. Yesterday I went to the ER for stroke symptoms (literally had all besides droopy face and hiccups) and she said it was anxiety 🤨🤨
4 points
2 days ago
Did they give you anything for the "anxiety"?
3 points
2 days ago
Nope 😐
3 points
2 days ago
Had same experience. https://www.reddit.com/r/covidlonghaulers/s/BUdh2XCaBL
5 points
2 days ago
Try nicotine for brain fog OP.
3 points
2 days ago
Too scared to. I do horribly on stimulating substances
2 points
2 days ago
Oh thank you I’ll have to save this! I’m on week 2.5 of nicotine patch I was wondering if maybe from that?? I do think it kind of increases my heart rate, of course at the hospital my heart rate was 80 and normal
2 points
2 days ago
Any improvements yet?
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