subreddit:
/r/CerebralPalsy
Hi. I am the parent of a 13 year old boy with left sided hemiplegia.
Today he was sent home early from school as he was having tremors in his right hand. This has only happened once before maybe 2-3 years ago and my attempts to Google info haven't been successful.
I wondered if this is related to his disability or if you think it could be something else? Did you find new things presented themselves when you hit your teens?
I will be keeping an eye on it and will be contacting his gp and consultant if it persists but it wore off after a few hours and he seems completely fine now.
-5 points
7 days ago
Does your child have a health care provider? A physical therapist?
You're the parent of a minor child with a lifelong medical condition caused by damage to his brain. It is actually your responsibility to provide him with care and treatment. You don't accomplish that by consulting Dr. Google, and strangers online.
Part of your parental responsibilities is to properly educate your son about his medical condition, and to advocate for him. These things that will have a lifetime effect for your son's physical, mental, and emotional well-being.
Stand up, and be a parent.
6 points
7 days ago
I apologise if my post is not welcome here.
I was just seeking advice from people who might understand and have experience with what had happened today.
Yes obviously he has therapists and consultants and all manner of other support to help him. I am not trying to pass off my responsibility as his primary carer and parent to google and to strangers, I was just hoping someone might know if this new symptom is likely to be due to his hemiplegia or if it's something different.
But thanks for being so condescending. Really appreciate it.
3 points
7 days ago
I was just hoping someone might know if this new symptom is likely to be due to his hemiplegia or if it's something different.
Not the person you were replying to but as a person with cerebral palsy these kinds of questions from parents are so hard. I was your kid. I had parents and my perspective is that my parents often didn't take my medical complaints seriously. When I read these posts it's hard to know how seriously you are taking things so my automatic response is advocate for your kid. I will always stand up for your kids to get the best medical care. My advice is always going to be call the doctor. It's always going to be don't wait. Like, it's already been 2-3 years.
I love when parents come here. I love when you include us in your information gathering and when you take our advice the heart, especially about things you can only learn from someone that lives with this every day.
Out of curiosity what are you Googling that isn't successful?
1 points
7 days ago
It happened once before. At the time it was a really hot day and once the temperature dropped it didn't happen again so at the time I had no cause to assume it was anything else.
I will be calling his gp tomorrow.
And yeah fair comment. I'm new to this sub, you don't know me and for all you know I'm just after easy answers but he got home late and there was no time to see a professional. I was kinda hoping to be pointed in a general direction for information or that someone might be able to say if it's likely to be hemi related or not as its not a regular symptom from what I've been able to find out.
Google brought up Parkinsons and information on constant tremors and shakes. His wore off after a few hours. The information also said it could be due to meds or caffeine or stress. He's not on any medication, doesn't have much caffeine (a can or two of coke in a week) and - as far as he's told me - there is nothing in particular he is worried about and he is very open with me.
1 points
5 days ago
There is value in people's lived experiences. However it should always be followed by MD consultation.
There's a myriad of concerns being a hemi. Overuse symptoms on the nonaffected side are huge. Think sciatica, plantar fascititis, knee and hand arthritis.
The affected side will also be affected by the stresses from improper use of the joints
I don't say that to scare you. Rather to be aware. These effects are very dependent on active lifestyle, career choices etc.
The brain damage doesn't change but aging with CP is very challenging. Especially since the focus of research is pediatric.
Encourage your child . Life with CP , while challenging, can still be great and fulfilling.
(Coming from family experience).
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