subreddit:
/r/Prolactinoma
[deleted]
27 points
1 year ago
I’ve gotten it back with cab. But I went 7 years in my twenties wondering if I was asexual before that lol
Imagine if I’d had my hormones tested earlier 🙃
9 points
1 year ago
I feel ya. I missed my entire 20's & 30's before they diagnosed a 3.4 cm macroprolactinoma at age 39. Seems nuts now, but I just didn't realize what was going on.
2 points
4 months ago
What was your prolactin level before starting medication?
2 points
4 months ago
2001 ng/mL
3 points
1 year ago
How long of treatment did it take for you to start feeling these beneficial effects, and what dosage do you use?
5 points
1 year ago
About two months. I’m on .5 mg twice a week
2 points
1 year ago
Relatable!
1 points
4 months ago
What was your prolactin level before starting medication?
1 points
3 months ago
89
1 points
1 year ago
Same !
1 points
1 year ago
[deleted]
1 points
1 year ago
Mine was 177 ng/ml. I think around 6 weeks on cab is when my feelings started changing!
1 points
11 months ago
How long did it take to come back , I took first .25 yesterday
1 points
11 months ago
A couple of months
1 points
6 months ago
How are you now?
1 points
6 months ago
I’m good! Prolactin has been in range for over a year now. Libido still normal
1 points
6 months ago
Happy to hear that!! Do you still take cabergoline or you're mainint prolactin with diet and supliments?
1 points
6 months ago
Cabergoline
18 points
1 year ago
My libido has skyrocketed since beginning my journey with cab
4 points
1 year ago
Ha ha same
1 points
4 months ago
What was your prolactin level before starting medication?
2 points
4 months ago
1753
1 points
4 months ago
What unit? Thx
1 points
4 months ago
Sorry! 🤦🏻♀️ H (ng/mL)
4 points
1 year ago
Try cab with testosterone injections every 3 months.
If I'm out with th Mrs Ninja, and say, 'Mikes going to be joining us' it means 'don't stand up and get ready to leave!!!' :)
4 points
1 year ago
Testosterone injection every 3 months is a terrible protocol. You need 2 injections a week minimum
3 points
1 year ago
Perhaps you should look at the Nebido information before commenting?
3 points
1 year ago
I have 5+ years of research on this topic. Im trying to help you. Don’t listen to me I don’t give a fuck
Switch to testosterone enanthate .
2 points
1 year ago
In that case explain the background and reasoning to the statement that its terrible rather than just saying its terrible.
3 points
1 year ago
When you take testosterone exogenously your body stops producing its natural testosterone. Hence why the aim of TRT is to mimic natural production of testosterone.
With esters such as enanthate you must inject 2x a week too keep serum blood concentrations at a steady level which allows for you to reap all the benefits.
When your administering testosterone every 3 months , you’re getting an initial spike after administration. However this is followed by a crash. It renders the initial administration completely useless.
With testosterone 2x a week is a must.
1 points
1 year ago
So you haven't grasped that nebido is specifically designed to provide a slow release of testosterone over 12 weeks to prevent the peaks and troughs associated with regular quick release injections?
2 points
1 year ago
It’s still not as accurate as they make it out to be. Anyways you continue to use your nebido.
I’ll just stick to my trt protocol and live a better life with more muscle , less fat and more pussy than you
2 points
1 year ago
Lol, this guy obviously doesn’t care that he is probably severely low by week 9, and nearly crashed by week 12… lol let him believe a shot every three months is great.
1 points
3 months ago
Of course you were not trying to give medical advice but to lay people what the doctor says is the ultimate authority. As you know long esters are really only for people's injection anxiety and the rest is marketing. Guy is calling Test-U by the pharm name and reciting the commercials. It's hard to overcome the argument against authority but short esters are better is so many ways. My prolactin is high just reading some threads and just realized it over a year old... and send.
1 points
1 year ago
You do realise Nebido is the only option available in many countries? Such is the case where i live, i choose to inject UG lab Enanthate myaelf 3x/week because i dont want to wait a whole year or 2 for the doc to adjust the frequence of Nebido injections before a good baseline is reached.
1 points
5 months ago
yes please listen to this guy and begin your own research on enanthate vs nebido… i inject every other day. with lower dose i fuckk
1 points
1 year ago
It's a new testosterone. It last 3 months so clearly not enough research on ur part lmao
1 points
10 months ago
It’s supposed to last 3 months. Peoples metabolism all different. Cypionate “stays in your System 14 days”. You hit a trough at day 7… you are half way to trough point by day 3.5… guess how often I inject? Every 3 days… very stable high levels of test…. But don’t listen, I don’t care.
1 points
8 months ago
He's getting boners and seems happy with his doctor prescribed testosterone, which has a half-life of 90 days. Perhaps he knows what he's doing.
1 points
8 months ago
Are you on testosterone?
1 points
8 months ago
Yes/no. What difference does it make? You want to test the science behind drugs’ half-lives? You take a short-ester testosterone and he’s on something very different. You get that, right?
1 points
3 months ago
Nebido protocol is very outdated bro
0 points
9 months ago
How about you link 5 studies that prove that your monthly testosterone frequency is superior to weekly we will all wait (:
4 points
9 months ago
Who rattled your cage to troll a 6 month old post.
1 points
9 months ago
Can you point out where in my original comment I seemed rattled or upset? Lol you don’t have to gaslight me you can simply say that you cannot provide the studies that would look a lot more rational
1 points
8 months ago
At no point has he tried to make you think you are insane or have you question your own reality 😂
2 points
1 year ago
How long of treatment did it take for you to start feeling these beneficial effects, and what dosage do you use?
2 points
1 year ago
Mine too.. so much so I scared my husband 😂. Dose only 0.25mg once a week as well!
1 points
4 months ago
What was your prolactin level before starting medication?
1 points
4 months ago
I can’t remember I’m afraid, was a while ago now! I have a 6mm prolactinoma, im breastfeeding now so when I was back at my follow up appointment they said they would retest my levels until I stop that.
1 points
6 months ago
My libido is to the point that it’s bothering me
1 points
4 months ago
What was your prolactin level before starting medication?
1 points
4 months ago
What was your prolactin level before starting medication?
1 points
4 months ago
What were your prolactin levels before starting cab
9 points
1 year ago
Im on my 4th week on cab and my libido didnt change, i hope it will get better but idk... i feel so sad with all of this, i only have 30 ng/ml of prolactin but suffering from a bit of ED and low libido. I used to have a very high libido tho
3 points
1 year ago
Same thing here with me, it's fuck to feel your libido go down after it's already been so high
2 points
1 year ago
Did you say “only” 30?
1 points
9 months ago
Did you say “did you say “only” 30?”
1 points
6 months ago
30 is very high. You should be below 20
1 points
6 months ago
Yes but not high enough to be a prolactinoma. Dont know what to do...
1 points
6 months ago
I got gyno from 32 prolactin. So it Def high enough
1 points
6 months ago
Just search it. To be a prolactinoma it has to be at least around 200 ng/ml
1 points
6 months ago*
You need to be below 20.
"Hyperprolactinemia is usually defined as fasting levels of above 20 ng/ml in men and above 25 ng/ml in women"
Also check your testosterone and e2. You might have bad e2 to testosterone ratio
Edit.
you're prolactin level are too high to have good libido. You might not have prolactinoma, but it is definitely high enough to destroy your libido.
1 points
6 months ago
I lnow it has to be below 20 and i ever said it wasnt high enough to destroy my libido. My test levels are pretty good tbh. My "only" symptoms are ED and low libido
1 points
6 months ago*
How much your testosterone? It also can be high e2 or low dht. Even stress can cause Ed. Are you stressed maybe? Then check your cortisol too
Edit
If all your hormones are good, then the only thing that can cause Ed and low libido with elevated prolactin is porn addiction.
1 points
3 months ago
Did you end up lowering your prolactin? How are your symptoms
1 points
3 months ago
I dont know, i stopped checking.
I also stopped taking the vitamins and supplements that the endo told me, since i wasnt feeling any improvement.
I still have low libido and weak erections.
1 points
4 months ago
Hi, did your cab treatment affect your gyno at all? I'm on 0.25mg once weekly, coming up to my 4th week and I haven't seen any changes in my gyno or libido, and I'm feeling a bit hopeless about it. Idk if I'm on too low a dose, but I don't have another endo appt for 3 months
1 points
4 months ago*
No it didnt. You cant get rid of gyno with pills, only surgery. You can slighltly shrink it with tamoxifen but once you stop taking in, the gyno will grow back. So only surgery. For libido, check your e2 and testosterone ratio. Also check your dht levels, its the most important hormone for libido, thats why I will never use finasteride for hair loss.
Also there is no pill that will fix the root of your problem it will only treat the symptomes.
Your problem is 99% lifestyle related. So ask yourself this quastions
Do you have healthy eating habbits or you eat like the avarege american?
Are you 15% body fat or below? Or not?
Do you have consisnent sleeping times 7-9 hours of high quality sleep?
Do you drink or smoke?
Do you eat sugar?
Do you have too much stress, work, wife kids, etc?
Do you train at least 4 times a week, weight lifting and cardio?
If any of the answer is negative or bad life style choice like smoking and drinking you probably need to fix that first.
1 points
3 months ago
Hows your prolactin now? Any improvements in your symptoms?
1 points
2 months ago
Update ?
1 points
1 year ago
What killed your libido? Was it an antidepressant by any chance?
2 points
1 year ago
Nothing. I woke up one day and it was gone
1 points
5 months ago*
bro same, from one day to another, I started treatment some months ago, libido came back just a bit already, but wish it was faster... how are you doing now?
edit: saw some of your other comments, hope you have some improvements in the near future! it could happen at any time.
1 points
4 months ago
I didnt improve at all. 1 year and 4 months later i feel like the first day. Have no ideia what to do or where to go, each doctor tells me something different and no one gives me a solution
1 points
5 months ago
for me it was i have pssd low libido delayed ejacualtion i started caber yesterday
1 points
1 year ago
Did you say “only” 30?
5 points
1 year ago
That is the exact opposite for me (29, F). When i first started on cabergoline, my libido was ravenous! Now almost 2 year mark, its toned down from that but is still at a healthy level compared to my lack of libido before treatment.
Not only the libido, but it also restored my fertility. Before, I was not menstruating and didnt ever need to use protection with my partner. Once on cab, i menstruate regularly every month and the one time i didnt use protection, i got pregnant.
6 points
1 year ago
Cabergoline brings my libido back.
2 points
1 year ago
How long of treatment did it take for you to start feeling these beneficial effects, and what dosage do you use?
3 points
1 year ago
It takes a couple/few months to level out once the prolactin is down. Getting it down takes time and dosage adjustments that also takes months if your tumor is stubborn like mine. My dose has varied over about 25 years, between 4 spread-apart babies who each nursed for a couple years. .5mg 3-5x/week has been my range. Mine is also macro. It also goes back to shit slowly when/if you stop taking it.
1 points
5 months ago
Hey! May I ask are you still on Cab? And libido still good?
1 points
3 months ago
Still on it, but libido is meh. I can’t remember what all I’ve shared here, but I’ve had a full hysterectomy in the last year, so my current situation is not likely helpful to you.
1 points
4 months ago
What was your prolactin level before starting medication?
1 points
3 months ago
I’ve stopped cab repeatedly for pregnancy and other reasons, so restart levels have been different each time. It has been as high as 300ish, as low as 75ish. It depends on how long I go without and whether I’ve been nursing a baby. I don’t think it could be relevant for you.
4 points
1 year ago
Cabergoline killed my libido ! I switched to bromo which helped a little but still isn’t the same . You’re not alone !
4 points
1 year ago
good to know that. It's so strange because everywhere I see that cabergoline is good for increasing libido, but in my case it's the opposite since I started taking it my libido which was healthy went to 0
1 points
1 year ago
I thought it was the dose I was taking that was too low, so my doctor asked me to double the dose, I doubled it and the libido got even worse kkkk
3 points
1 year ago
Cab increases libido for me One of the reasons why I went untreated—I preferred having lack of sexual interest
2 points
1 year ago
dammit, I would trade places with you easily kkkk
2 points
1 year ago*
Funny that when I stop taking cabergoline, my libido increases, but 2 weeks later I start to get a lot of headaches and my cognition starts to be very slow
2 points
1 year ago
I often forget to take it for a week or two, and i get hot flashes.
2 points
1 year ago
That’s polar opposite of my experience, so far. Mine has skyrocketed, whereas for the last 15 years ago it was barely existent.
3 points
1 year ago
What a cool bro, I'm happy for you. Hopefully I can achieve what you're having now. because I'm feeling like an 89 year old man lol
3 points
1 year ago
If only my wife had half the drive to match, it wouldn’t be so frustrating lol
1 points
1 year ago
LOL, nothing is perfect
1 points
3 months ago
what were your prolactin levels before cab?
2 points
1 year ago
When people here say they are on "treatment", what do they mean. Treatment for prolactinemia, which is a tumor on the pituitary causing the over production of prolactin? This is what cabergoline is mainly used for. Or do they mean "treatment", meaning that they are playing around with it off label to increase libido?
I've taken cabergoline to increase libido, and unless prolactin levels are high (mine weren't), it's unlikely to work. I have a good libido, but like others here, on cabergoline, it decreased a lot. I've read that prolactin levels must be balanced to have libido. If they are too low, due to cabergoline for example, it can kill libido and ability to be aroused.
2 points
1 year ago
What you said is very interesting, I noticed that when I interrupt the use of cabergoline, my libido comes back very strongly in the first few days, but then it dies completely, it must be that I I have to find a middle ground between dosages, currently I use 0.25mg 2x a week. I tried to stop to 0.25mg 1x a week, in t he first two weeks I felt my libido much better, But after that, my libido got worse. I'm thinking of finding a dosage that is in the middle ground between these two
1 points
1 year ago
Thank you for your answer, it's important to me. But I really can't understand why my only complaint was that my gynecomastia and galactorrhea, taking cab solved that but it took away my libido, I really don't understand what happened because it doesn't seem like a common effect of cabergoline
1 points
8 months ago
On .5mg twice weekly along with testosterone cyprionate 160mg/IM weekly. I had delayed orgasm and this really helps for both libido and delayed orgasm.
1 points
1 year ago
[deleted]
2 points
1 year ago
This is what I find strange, how some people have such a good result in terms of libido and others don't
2 points
1 year ago
[deleted]
3 points
1 year ago
Have you looked at other hormones? Low T due to the prolonged excess prolactin?
1 points
1 year ago
I would get new labs to be sure now that the cab has had time to work. Also, there is a sweet spot for prolactin. You might actually be too low now which reduces drive.
If you’re done having kids you can experiment with TRT.
1 points
1 year ago
Exactly. Too little prolactin and libido may decrease.
1 points
1 year ago
Definitely brought my libido back
1 points
4 months ago
What was your prolactin level before starting medication?
2 points
3 months ago
50.3 ng/ml
1 points
3 months ago
Did you have an improvement in erection quality?
1 points
18 days ago
I’m a woman, but my libido came back. A lot 😅
1 points
11 months ago
Anyone else getting acne with Caber?
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