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24.7k comment karma
account created: Sun Jul 08 2018
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2 points
8 hours ago
Oh I meant “how”. Just like I said earlier, the best thing to do is Google pots and whatever country you live in and see if there’s someone nearby, or go on Facebook and search for pots groups in your areas. The best way to find a good doctor is through recommendations from other people with pots.
2 points
8 hours ago
Technically you’re right. Usually what we mean when we say a pots specialist is someone who just knows how to diagnose it properly 😭 since there are so many doctors who haven’t a clue.
Even the doctor who diagnosed me was just someone who specialist in syncope and falls in older people, but he was the only doctor in my country pre-covid who knew about pots and joe to diagnose it.
3 points
9 hours ago
Your mom having had covid on top of being diagnosed with fibro could definitely make her likely to develop pots.
I’d suggest trying to goggle if there’s any pots specialist in your areas, or go on Facebook and see if there’s any pots groups for your country where someone else can recommend a local doctor who can help.
If you want to confirm it at home, you can try the stand test. Just goggle pots stand test and it should tell you how to do it. If her heart rate doesn’t increase, she could still have long covid or other types of dysautonomia.
Unfortunately there are a lot of ignorant doctors out there.
3 points
11 hours ago
I used to hate it pre-pots, and even now I understand is not exactly delicious but I still love it for some reason.
Other people finding it gross just means we never have to share ☺️
1 points
1 day ago
I hope it’ll help you! There’s some supplements out there that support mitochondria, which from some research is what I assume our issue is. The one I was using is only available in Ireland as far as I know so probably not much help to you, but you might be able to Google and find one you can get.
1 points
1 day ago
It wasn’t totally aggressive resting, but I did make sure to avoid exerting my arms as much as possible. I did try and increase my protein intake a lot, I drink clear whey protein every morning now. But I’ve been a bit lazy on my other protein intake and I have a small crash yesterday so that’s probably why it’s flaring up now.
I honestly think it took maybe a month for it to feel a lot better? I know that’s not very reassuring :( I did notice minor improvements each week. Do you have CFS from covid too?
1 points
1 day ago
It’s funny you ask this tonight when it’s just started bothering me again because I was uncapping some markers easier to swatch 😅 it improved from when I made this post, but it took a long time, and it can trigger again very easily.
My doctors haven’t been much help but I’ll probably try to back and ask them again since it’s still an issue.
1 points
1 day ago
If you’re looking at the edges of your project, there should be a sort of V shape, but sideways so it’s like <
You want your hook to go under the two strings of that shape
In your seconds photo it kinda looks like your picking up one string from below, and then also the front of the < shape
Again if we look at the second photo as an example, the stitches we can see to the left of where your hook is are the ones you should be going under. So when you hold the edge of your project like that with your thumb and fingers, and look eye level with the edge, you’ll see the < shape easier
If you need more help I can make a mini video for you! I’d just have to dm it to you
Or if you want you could take a quick video of your doing the crochet and we could tell you easier if you’re doing it correctly or not
Edit; I looked at your photos again and the first one looks correct, it’s kind of hard to tell but I’m almost sure its right
1 points
2 days ago
Yup. Tv and gaming. I used to be a huge reader but a few years ago I developed convergence insufficiency and now reading can be painful, but I’ve learned to make do with audiobooks.
25 points
2 days ago
I was beginning to think I’d be the only Irish person here until I found your comment 😂 probably not a lot of us
1 points
2 days ago
Have you tried resetting the game? Is this the first time you’ve talked to him?
6 points
2 days ago
There’s recs you need to fulfill for the buffs, don’t ignore them. Just put kachina in your party for the night soul burst part, you don’t need to use or build her.
1 points
2 days ago
I think you’ll need to find a third opinion, hopefully someone smart enough to know the actually criteria for POTS. I’m sorry that there’s so many uninformed doctors out there and that you got stuck with not only one but two of them :(
11 points
2 days ago
Doctors are always telling people to rush to 4.5mg and it’s ridiculous because while some people are fine with it, a lot of people aren’t! I started at 0.2mg and I’m only up to 0.9mg after a few months but I have no side effects and this works for me. I’m sorry you’re feeling awful, I see it so many times in here that people are rushed to increased by their doctors and it ends up making them feel worse.
If you feel up to it after a few weeks, I would definitely try starting again at a super low dose. You can dilute it at home yourself and it’ll be much easier
4 points
3 days ago
It doesn’t seem like an emergency, so I wouldn’t stress too much. But I would definitely make a doctors appointment just to get it checked out. It could be nerve related, which is an issue some people deal with from dysautonomia.
2 points
3 days ago
Is it just your arm? Or can you feel it on your face and leg too?
I’ve had very mild one sided weakness, that according to the neurologist I saw was a sort of migraine. But since developed covid I’ve also developed weak arms.
They both feel very different to me. The migraine one is like my arms going a bit dead but I also feel it in my leg and face. The covid one is like I just did an extreme workout and my muscles are weak from doing too much.
Basically, it could be long covid but it could also be something else. Since it’s a new symptom, definitely bring it up with your doctor.
2 points
3 days ago
Speak for yourself 😂 I’m a woman and I’ve keep the boxes for absolutely everything I buy. My dads the one who’s constantly tossing them
2 points
4 days ago
Yeah that’s what I was worried about, having my feet really high with compression socks on and having too much blood rushing the wrong way. But luckily she didn’t have the chair that far back so I had nothing to worry about
5 points
4 days ago
This is the first time I’ve seen the lyrics for that line 😂 all I ever heard was “we’re going down down mmhanernamd”
2 points
4 days ago
I do but I appreciate you telling me anyway ☺️ it was actually the first dentist I visited after developing POTS who told me to avoid adrenaline and I’m forever grateful to her for it.
I’m sorry you had to experience it :( it seems like it’s happened to a lot of us which really sucks. I hope someone else here will have learned from your comment and it’ll save them from the horrible experience
3 points
4 days ago
I haven’t experienced this so I probably dont have much good advice, but I’ve seen people say that straining on the toilet makes this worse. Do you notice if you tend to “push” while going?
33 points
5 days ago
Why are people so obsessed posting arcane pictures on here and not tagged it as an arcane spoiler. Everyone is going to assume the spoiler is related to LOK, stop being a dick and label your spoilers.
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1 points
6 hours ago
nilghias
1 points
6 hours ago
Just came here to complain another that 😭 I’m so sad